You’re not alone in your MS journey

We are not just our disease. Who are you 🫵🏻 other than MS? Share your interests, family, work, hobbies, etc - all things in your life that don't involve MS. 💪🏻

Hi there! I am newly diagnosed with MS as of September 2024. I unfortunately reacted pretty negatively to my first major round of steroids (5days worth). During the weeks following, I faced steroid induced psychosis and mania. I was treated with divalproex and quetiapine and am still on the meds. Were any of you able to wean off or had a similar experience? How do doctors approach future flare ups with this knowledge? Thanks!!

I’m just really annoyed w my doctor rn. Can anyone tell me what this means …. I have 95% lymphocytes, csf 16mm3,csf rbc 23mm3, csf see neutrophil 2%,igg csf33.4, igg serum30mg L… 🤷🏻‍♂️

I'd say this photo is worth 10,000 words.

Hello everyone. I don't think I have ever posted here, I just read many of your thoughts. 🙂 Today I have a question (I am not sure this is the right place to ask this question). I am wondering about anyone's experience and/or thoughts or experiences with advanced directives. I have Secondary Progressive MS and it is time for me to again look hard at my future and what I may want for my final days etc. What experiences do you have? Advice? Thank you.

Hello, I reside in Sacramento, C I was diagnosed with Secondary Progressive in 2014 at age 65 after trying to solve my symptoms since 2005. It was frustrating. I saw at least 5 neurologists who insisted I was fine and that I needed to “go home” and have a long talk with myself . I felt dismissed Three years ago I transitioned to Primary Progressive . I am slowly getting worse. Due to may age I never was able to take any DMT medication. I am now 78. I have good days about once a week. Other days I have much discomfort, my legs are quite wobbly and I have Cognitive Impairment. It is a crap shoot how each day will unfold. On top of it all I lost my life partner of 32 yrs to prostate cancer, had my gall bladder removed and had a lobectomy as I was found to have lung cancer. So I now mark time between scans. Having that surgery was the worst challenge of my life. Some days my fatigue is intense I simply let it have its way. I sleep and pamper myself.I also take Provigil which certainly helps I am fortunate to have one of three Multiple Sclerosis Achievement Centers in my town. The MSAC is a support that I have found to be invaluable. When I go to our 5 hr program once a week I am able to experience time with other MS patients of all ages. When I speak, they know…they just know