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10 Ways to Find Support When You Live Alone with Chronic Illness

10 Ways to Find Support When You Live Alone with Chronic Illness

Living alone with a condition can be challenging, but there are people who want to help.

February 21, 2025

by Beth Ann Mayer

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Figuring Out Life with Multiple Chronic Illnesses: How I Did It

Figuring Out Life with Multiple Chronic Illnesses: How I Did It

Take it from me, pacing yourself is key.

February 21, 2025

by Hannah Shewan Stevens

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Truth or Hype? How to Spot Health Misinformation

Truth or Hype? How to Spot Health Misinformation

False health claims are out there, but you can sharpen your spidey sense so you don't fall for the fictions.

February 21, 2025

by Stephanie Orford

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Medications and Therapies
Hi there! I am newly diagnosed with MS as of September 2024. I unfortunately reacted pretty negatively to my first major round of steroids (5days worth). During the weeks following, I faced steroid induced psychosis and mania. I was treated with divalproex and quetiapine and am still on the meds. Were any of you able to wean off or had a similar experience? How do doctors approach future flare ups with this knowledge? Thanks!!
2 replies3 likes
Symptoms
I’m just really annoyed w my doctor rn. Can anyone tell me what this means …. I have 95% lymphocytes, csf 16mm3,csf rbc 23mm3, csf see neutrophil 2%,igg csf33.4, igg serum30mg L… 🤷🏻‍♂️
3 replies1 like
Casual Conversations
I'd say this photo is worth 10,000 words.
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Mental Well-Being
Hello everyone. I don't think I have ever posted here, I just read many of your thoughts. 🙂 Today I have a question (I am not sure this is the right place to ask this question). I am wondering about anyone's experience and/or thoughts or experiences with advanced directives. I have Secondary Progressive MS and it is time for me to again look hard at my future and what I may want for my final days etc. What experiences do you have? Advice? Thank you.
3 replies
Casual Conversations
Hello, I reside in Sacramento, C I was diagnosed with Secondary Progressive in 2014 at age 65 after trying to solve my symptoms since 2005. It was frustrating. I saw at least 5 neurologists who insisted I was fine and that I needed to “go home” and have a long talk with myself . I felt dismissed Three years ago I transitioned to Primary Progressive . I am slowly getting worse. Due to may age I never was able to take any DMT medication. I am now 78. I have good days about once a week. Other days I have much discomfort, my legs are quite wobbly and I have Cognitive Impairment. It is a crap shoot how each day will unfold. On top of it all I lost my life partner of 32 yrs to prostate cancer, had my gall bladder removed and had a lobectomy as I was found to have lung cancer. So I now mark time between scans. Having that surgery was the worst challenge of my life. Some days my fatigue is intense I simply let it have its way. I sleep and pamper myself.I also take Provigil which certainly helps I am fortunate to have one of three Multiple Sclerosis Achievement Centers in my town. The MSAC is a support that I have found to be invaluable. When I go to our 5 hr program once a week I am able to experience time with other MS patients of all ages. When I speak, they know…they just know
1 reply4 likes
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