Geoff Burrow said the rarity of Kyle Sieniawki’s condition could be used to raise awareness.

Organisers launch a marathon relay and one-mile run to enable even more people to take part.

The challenge was inspired by the boys' grandfather who battled MND for two years.

The prince has written the foreword to a book by Lindsey Burrow, wife of the late rugby player Rob Burrow.

Mike Humphreys has described completing the challenge on a Raleigh Chopper bicycle as "unreal".

Rob Hasler's regular runs up a hill have been replaced by walks with friends, family and pupils.

Lachlan Campbell says the diagnosis left him with devastating fears of how to support his family.