Who are we?
We are researchers, medical providers, and caregivers who are trying to improve care for people with memory problems (like dementia) and their caregivers.
Caring for people with dementia, particularly at end-of-life, is hard. We want a better understanding of experiences across multiple communities.
We want to hear from you.
If you have cared for someone who died with a memory problem, like dementia, we want to hear about your experiences.
You will be paid for your time.
Your insight may help improve end-of-life care for others.
See if you are eligible for our caregiver study
Click here to take a 5-minute survey to find out.
More Information
Why does this study need my help?
We want to improve end-of-life care for people with dementia and their caregivers. Lessons from this study will be used to make recommendations to change hospice practice and policy.
Is this study for me?
You do NOT need experience with hospice to be in this study.
You may be eligible for this study if:
- You were 18 years or older when you cared for someone who passed away.
- The person who passed away had memory loss, which may have been from dementia.
- You are African American or Black, Asian American and/or Pacific Islander, Latino/a, or multiracial.
- You live in the U.S.
- Prior experience with hospice is NOT required
You may not be able to be in this study if:
- The person you cared for had memory loss that was not from dementia, such as brain cancer or head trauma.
- The person you are caring for is still alive.
What will happen if I participate in this study?
Will I be paid for being in this research study?
Will it cost me anything to be in the study?
